Labels, schmabels.

21 May

Got a lovely e-mail from an old high school friend I haven’t seen in years who saw the essay on AOL. In his message he said he always wondered what it was I was dealing with, and that perfectly sums up what can be so hard about living with K-T. I’m definitely NOT suggesting it’s harder or less hard than having, say…an amputated leg or a hair-lip or [fill in the blank], it’s just different. (And by the way, message to certain AOL commenters: Nobody ever wins the game “You Think THAT’S Bad….” so let’s cut it out, huh? Why can’t we all just be compassionate and rad?! Misery one-upping doesn’t seem fun.)

I’m not always sure what people make of me (and I wish I could say who cares, but…give me time!). It’s sort of head-trippy to think that people are looking at you and wondering what’s wrong. Wondering is not necessarily the same as judging, but it can feel that way. One of the things I struggle with is people looking and simply not knowing what it is, not being able to put a name to what I’ve got. Not sure why labels are so important….

Anyway, what do you guys think?

2 Responses to “Labels, schmabels.”

  1. Nancy May 21, 2009 at 11:46 am #

    Labels are not important, but someone who looks a little different will get looked at, no doubt about it. Ignore every single stare unless they ask you politely what your condition is. Its not your problem to deal with their questioning minds unless they open their mouths and speak.
    Well thats what I tell my kid.
    People are going to start making fun of me I think because I keep saying this in emails at our kt group….I tell my kid all the time, “yes people will notice your birthmarks etc, just make sure your smile is the next thing they see.”

    Honestly there is nothing you can do for inquiring minds unless they ask you politely. Because the truth is, not EVERY look your way has to do with whats wrong with you or what they are noticing is wrong about you. Sometimes, they just think you look nice or interesting. Begin to assume thats why they are looking at you.

  2. kidish May 21, 2009 at 4:38 pm #

    I think that walking with a permanent limp that people have mislabeled as a strut is awesome. And maybe when I grimace in pain or discomfort, people think I’m just being angry. Go K-T, go!

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