Comments for Such a Pretty Face http://carlasosenko.com The official site of writer Carla Sosenko Wed, 30 Jun 2010 13:56:15 +0000 hourly 1 http://wordpress.com/ Comment on About by erin http://carlasosenko.com/about/#comment-562 erin Wed, 30 Jun 2010 13:56:15 +0000 #comment-562 Hi Carla, I too have KTS and was pleased to see you write about it. I've faced some really tough times with my KTS. Being sick and folks not understanding because I "look fine" to them and have a pretty face. I'm going through a very hard time right now- and I am, as you must be with KTS, a tough girl. I've spent a great deal of my adult life working to make life for those with KTS better. Recently I've discovered a potential solution for the tachycardia that comes along with KTS in many women. I will be writing it up with Dr. Giannoula Klement at Tufts. I can be reached @ erinrosas@gmail.com or (352)812-5036. Hi Carla,

I too have KTS and was pleased to see you write about it.
I’ve faced some really tough times with my KTS. Being sick and folks not understanding because I “look fine” to them and have a pretty face. I’m going through a very hard time right now- and I am, as you must be with KTS, a tough girl.
I’ve spent a great deal of my adult life working to make life for those with KTS better. Recently I’ve discovered a potential solution for the tachycardia that comes along with KTS in many women. I will be writing it up with Dr. Giannoula Klement at Tufts. I can be reached @ erinrosas@gmail.com or (352)812-5036.

]]> Comment on What the what??? by Cécile http://carlasosenko.com/2010/05/21/what-the-what/#comment-560 Cécile Tue, 15 Jun 2010 14:14:41 +0000 http://carlasosenko.com/?p=562#comment-560 Hello, can you explain to me what is a Bachelorette ? Hello, can you explain to me what is a Bachelorette ?

]]> Comment on About by Alva Buendia http://carlasosenko.com/about/#comment-527 Alva Buendia Sat, 22 May 2010 23:25:42 +0000 #comment-527 I find this article very helpful. It tells all the things that you need to know and what you need to do. Thanks a lot for sharing your knowledge to us. I find this article very helpful. It tells all the things that you need to know and what you need to do. Thanks a lot for sharing your knowledge to us.

]]> Comment on What the Guys I Date Don’t Know by Daniela http://carlasosenko.com/2009/05/31/what-the-guys-i-date-dont-know/#comment-515 Daniela Tue, 18 May 2010 11:54:28 +0000 http://carlasosenko.com/?p=301#comment-515 Hello, I too have a KTS. I have 26 years old and when I born I have this problem. Is difficult for me don't wear clothes like other girl. Sometimes I think that this is a horrible disease. But I have a good boyfriend that love me with my problem, you know my red leg and you accept this. I think is difficult for other person don't watch my different leg but sometimes my friends tell me "It's no much different", but I know that is not the truth but I appreciate their loveable opinion. Thanks to write this article, I'm happy to know that other person are in my situation. A big hug to all. Sorry for my English, I'm Italian and I don't write well on English. Hello, I too have a KTS. I have 26 years old and when I born I have this problem.
Is difficult for me don’t wear clothes like other girl. Sometimes I think that this is a horrible disease. But I have a good boyfriend that love me with my problem, you know my red leg and you accept this. I think is difficult for other person don’t watch my different leg but sometimes my friends tell me “It’s no much different”, but I know that is not the truth but I appreciate their loveable opinion.

Thanks to write this article, I’m happy to know that other person are in my situation.

A big hug to all. Sorry for my English, I’m Italian and I don’t write well on English.

]]> Comment on About by Jeff http://carlasosenko.com/about/#comment-507 Jeff Tue, 04 May 2010 16:46:59 +0000 #comment-507 Carla, I am currently involved in putting together an event to benefit a seven year old girl with KTS. So far she has had eight surgeries with three more scheduled for this Summer. Also, the surgeries and doctors are located in Boston and New York City and the family is in Florida so there is a significant travel cost as well. We are putting together a daddy-daughter function to raise money for the upcoming surgeries and, the primary fund raising will be done through a silent auction held on June 10th. And, while I'm certain that you have circles of influence through your connections as a successful writer to bring in donations of both money and items for the auction, all that I'm asking of you is that you take a moment to write a letter of encouragement to this seven year old girl as she continually faces new battles every day. It is impossible for anyone to genuinely relate to what she is going through unless they, themselves, have experienced it. Thank you for your time and I look forward to hearing from you soon. Carla,

I am currently involved in putting together an event to benefit a seven year old girl with KTS. So far she has had eight surgeries with three more scheduled for this Summer. Also, the surgeries and doctors are located in Boston and New York City and the family is in Florida so there is a significant travel cost as well. We are putting together a daddy-daughter function to raise money for the upcoming surgeries and, the primary fund raising will be done through a silent auction held on June 10th. And, while I’m certain that you have circles of influence through your connections as a successful writer to bring in donations of both money and items for the auction, all that I’m asking of you is that you take a moment to write a letter of encouragement to this seven year old girl as she continually faces new battles every day. It is impossible for anyone to genuinely relate to what she is going through unless they, themselves, have experienced it. Thank you for your time and I look forward to hearing from you soon.

]]> Comment on About by Jim http://carlasosenko.com/about/#comment-492 Jim Tue, 06 Apr 2010 07:23:58 +0000 #comment-492 Hi Carla, I understand how you feel because I have an issue with my self image that has affected me throughout my life. I apologize to all those who might be interested in what it is but I will only share my feelings with Carla. I hope you can trust a man at some point in your dating and have true happiness. I know that dating is a numbers game in the best of circumstances. Hi Carla,
I understand how you feel because I have an issue with my self image that has affected me throughout my life. I apologize to all those who might be interested in what it is but I will only share my feelings with Carla.

I hope you can trust a man at some point in your dating and have true happiness. I know that dating is a numbers game in the best of circumstances.

]]> Comment on Brrrrrr. by Gordon McGuire http://carlasosenko.com/2010/02/25/brrrrrr/#comment-466 Gordon McGuire Tue, 16 Mar 2010 19:10:13 +0000 http://carlasosenko.com/?p=551#comment-466 hello, living and dating with no answers. i wasn't diagnosised until i ws 41. had fun before then coming up with stories that caused reflection back to the ones who asked about me. i was looking foward to meeting you in mn but, i won't be able to be there this time. please go to my site handycapped.com. i just started redoing it so there are no pictures except the ones in the articles and media clips that are listed. it's the same crushing experience to watch the intrest drop from a woman's eyes after noticing "something different" about one's self. my best to you: please read the articles and watch the ripley's segment along with the discovery health channel segments. feel free to get back to me with any questions or comments. i would enjoy sharing stories from many aspects of my life where they would help the most or just provide comic insights from this side of life. michael is going to be on nat. geo the 20th of march. the segment is titled "Blood". hello,
living and dating with no answers. i wasn’t diagnosised until i ws 41. had fun before then coming up with stories that caused reflection back to the ones who asked about me.
i was looking foward to meeting you in mn but, i won’t be able to be there this time.
please go to my site handycapped.com. i just started redoing it so there are no pictures except the ones in the articles and media clips that are listed.
it’s the same crushing experience to watch the intrest drop from a woman’s eyes after noticing “something different” about one’s self.
my best to you: please read the articles and watch the ripley’s segment along with the discovery health channel segments. feel free to get back to me with any questions or comments. i would enjoy sharing stories from many aspects of my life where they would help the most or just provide comic insights from this side of life.
michael is going to be on nat. geo the 20th of march. the segment is titled “Blood”.

]]> Comment on What the Guys I Date Don’t Know by Karen http://carlasosenko.com/2009/05/31/what-the-guys-i-date-dont-know/#comment-463 Karen Fri, 12 Mar 2010 19:11:08 +0000 http://carlasosenko.com/?p=301#comment-463 I too was born with KTS- undiagnosed until age 19. I think your piece was wonderful. I had similar feelings to you when dating but I have grown to accept the body God gave me and I have a gorgeous husband, a job I love, a supportive family and wonderful friends---I sometimes forget I have the syndrome at all!!! I would encourage everyone with KTS to give themselves time and space to accept their own body and work through the negative feelings- especially during those body conscious teenage years. I too was born with KTS- undiagnosed until age 19. I think your piece was wonderful. I had similar feelings to you when dating but I have grown to accept the body God gave me and I have a gorgeous husband, a job I love, a supportive family and wonderful friends—I sometimes forget I have the syndrome at all!!! I would encourage everyone with KTS to give themselves time and space to accept their own body and work through the negative feelings- especially during those body conscious teenage years.

]]> Comment on Brrrrrr. by Julie-Ann http://carlasosenko.com/2010/02/25/brrrrrr/#comment-455 Julie-Ann Thu, 25 Feb 2010 20:35:35 +0000 http://carlasosenko.com/?p=551#comment-455 When there is both snow and a comfy chair involved, of course you should choose that route! Especially when there is a *new* comfy chair involved! Love the photo! When there is both snow and a comfy chair involved, of course you should choose that route! Especially when there is a *new* comfy chair involved!

Love the photo!

]]> Comment on Hey look, I’m going to be speaking in Minnesota! by Francoise http://carlasosenko.com/2010/02/13/hey-look-im-going-to-be-speaking-in-minnesota/#comment-450 Francoise Wed, 24 Feb 2010 20:01:04 +0000 http://carlasosenko.com/?p=547#comment-450 Hi carla, I feel for you because I also have the KT syndrom( bigger right leg and lump and angioma in the back...... beleive me ,I know where you are.....I am 44 married for the 2nd time and mother of 3 kids...I got very scared to pass on that syndrom to my babies but none of them got it !!! I became a pro at hiding my legs and my back...Lately i had some lazer done on my back and it worked really well. I wear sleveless t-shirts since last year!! I still dream of wearing skirts but this will probably never happen in this life! I am a Yoga instructor and Yoga helped me a great deal to coop with our syndrome !! Good luck on your book! I will get it ! Sincerely Namaste Francoise Hi carla,
I feel for you because I also have the KT syndrom( bigger right leg and lump and angioma in the back…… beleive me ,I know where you are…..I am 44 married for the 2nd time and mother of 3 kids…I got very scared to pass on that syndrom to my babies but none of them got it !!!
I became a pro at hiding my legs and my back…Lately i had some lazer done on my back and it worked really well. I wear sleveless t-shirts since last year!! I still dream of wearing skirts but this will probably never happen in this life!
I am a Yoga instructor and Yoga helped me a great deal to coop with our syndrome !!
Good luck on your book!
I will get it !
Sincerely
Namaste
Francoise

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